What I wanted as an intractable disease patient

What I wanted most when I was 10 years old and developed a rare cancer (osteosarcoma).
It wasn’t a silver bullet, it was.
As a third grader, I was a little more shy than the children around me.
Because of his shyness, he was not good at communicating his thoughts and opinions to the other party.
One day, when I suddenly became a patient with an intractable disease, I created a wall with the people around me and closed my heart.
I was thinking at that time.
That is “loneliness”.
“I’m alone in this world.”
I was so lonely that I forgot that I had an incurable disease.
When I became lonely, I couldn’t hear the voices around me.
At the same time, I no longer feel anxious about the future.
I have no future.
I can’t live in the future.
I can’t live the same life as everyone else.
I’m sure life is like that.
A life that ends in no time.
I was born to experience that “life that ends in a blink of an eye”.
From a different point of view, I realized my life at this moment.
It’s still strange, but I remember feeling a little courage when I felt that kind of feeling in my life.
It’s like being wrapped in something, like being protected.
However,…
But I was shedding a lot of unstoppable tears.
After all, I’m lonely.
Someone please help me.

Anyone is fine
Please help me.
My heart was filled with complex emotions one after another, like the sea that was rippling violently.
And when I noticed, I was asleep.
When I woke up, another feeling was born in me.
that is…
Continue on another day.

ほっし校長

10歳の時、100万人に1人の確率で発症の希少ガン(骨肉腫)を発症。
主治医からの、ガン告知と右足の切断と余命の宣告。自らの経験から、ガン患者さん、特に小児ガンの子供たちの心を世界中に伝えたい。

At the age of 10, one in one million people develops a rare cancer (osteosarcoma).
Cancer notification, amputation of right leg and life expectancy from the attending physician. From my own experience, I would like to convey the hearts of cancer patients, especially children with childhood cancer, to the world.

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